Every day,this question haunts me as I continually seek the best way to live my life with chronic Lyme.
LYME has taken over most of my LIFEwithout my permission or control; that is the nature of the disease and certainly after thirteen years, that is the nature of CHRONIC LYME disease in a person’s body.
Some days, the parts of LIFE that I cannot participate in include basics such as
- exercising (too little oxygen),
- going to movies (too loud & theatre is too cold),
- doing errands (brain is very foggy and body is too exhausted),
- talking on the phone (again, too little oxygen, as well as brain fatigue and fog),
- cooking (brain fatigue and fog, body exhaustion),
- or even reading, one of my all-time favorite habits (extreme muscle and joint pain so that holding a book up would be *too much,* brain fog and fatigue, strain on eyes, behind which are four or five headaches engulfing my entire head in their painful, pulsing grasp).
Other parts of LIFE,such as travelling, dating, going to school, working multiple jobs or working in an intense field, are parts that often overwhelm me so much with even the THOUGHT of them, I cannot even begin to think of how I would actually fulfill them. LYME has grown over those parts of my life, in many ways; the symptoms listed above are only a few of the side effects of this disease that plagues me chronically, assuring as time passes and the symptoms and chronic pain increase that
LYME *IS* my LIFE.
But I wish, and I hope, and I WORK HARD,
towards the day when the question posed above will not even be an issue.
LIFE and LYME will always co-exist for me.